Friday, May 6, 2022

So Much Joy

We often hear how beneficial it is to live in the present, to enjoy the moments as we live them. It's not easy for many of us as the worries of tomorrow, the endless to-do lists and busy calendars keep us living in the present while always thinking about the future.

One of the blessings of Teddy's diagnosis is that he lives in the present. (It's only a curse when the present is absolutely horrible for him, as then he feels big feelings and is inconsolable and nothing distracts him, not even the promise of favorite things in the future.)  He finds joy in such simple things that we often overlook. Whether it's the deliciousness of ice cream or the excitement of going someplace "new" like the doctor's office, he is simply happy to be alive. 

The source of this joy and mess? Chocolate ice cream!

When I can experience the world through Teddy's eyes, I can find more joy than with my own eyes. His joy eyesight is better than mine. And one of my favorite things is that he wants others to experience the things that bring him joy. If he's doing an activity or playing with a toy that he thinks is fun, he'll ask others to do it and then grin and giggle because he's sharing his joy. 

Life isn't all sunshine with CDG, but Teddy's smiles light up a room even on the dreary days.

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