CDG World Awareness Day 2022- AJ's Version

Hello to all reading this letter. This is AJ.

Happy CDG World Awareness Day!!  I'm Teddy's big brother, and I was thinking "What would my life had been if Teddy was normal?" Well, Teddy comes with pros and cons. 

Pros: 

• Amazing brother
• Always has a smile
• Never would have met so many cool families with CDG-PIGN (Congenital Disorder of Glycosylation-PIGN variant)
• We would have never gotten amazing babysitters (Bri and Sigrid)
• And so many other things Teddy has given us

Cons: 

• Would never have to deal with research studies and tests 
• Life-threatening seizures
• Teddy harassing me
• And him causing trouble

Teddy is a one-of-a-kind gift given to our family. " So, what would my life be?" you ask. Well, it would be totally different. So, Teddy's proof that anyone can be amazing and make a difference no matter what religion, skin tone, disability, problem, or differences they have. Teddy is a gift in his own way, and nothing will change that. Because of Teddy's disability, my mom's been able to help so many other families with CDG-PIGN. 

Sincerely,

AJ Blondheim

CDG World Awareness Day 5/16/2022

CDG World Awareness Day 5/16/2022

PS. The cookies were made by mom. If you want some of these or other delicious things, you should email to get in contact with Kerry at nonesuchbakeryllc@gmail.com

PSS. All the pictures were taken by me (AJ).