Improvisation

This past weekend I noticed Teddy got a bit creative to entertain himself while we were driving. He took the string of his lacing toy, inserted one end into the charging port of his phone and inserted the other end into his ear. He created his own ear buds for his phone, a modern spin on the old-school telephone game.

This kid cracks me up.

Really creative approach to make your own headphones.

Shoe Sponsorship

All shoe companies, listen up. I'm offering you the rare opportunity to work with a 1-of-a-kind partnership for your brand. This kid is one in a million (actually more rare than that!). He has a smile that lights up a room, he loves shoes and he's mighty convincing. I can't tell you the amount of times I heard someone say, "I'm not doing that," only to be doing that minutes later. Oh, and he'll never speak a negative word about your product. 

Yes, Teddy would be the perfect candidate for a sponsorship with a shoe company. Heck, he's content to live within his means, so he would really be OK with no actual cash transactions, just new shoes as often as he needs them. (Let's be real, he would take the cash and buy a bus. Or a train. But probably a bus.)

This kid is burning through shoes. As his SMOs (braces to support his ankles and help him walk properly) grow larger, the struggle to find shoes that fit them only gets more challenging. It takes a men's size 7 to fit his braces currently, and even then we can only find a handful of special shoes that will fit over his braces. While we could try going to larger sizes, then we create the clown shoe issue where he'll be tripping (more) because his shoes are so big compared to his feet and body. 

We used Billy shoes for a while, and they were fantastic at first. But lately they've just fallen apart within weeks. Literally, the last 2 pairs did not even last a month without serious amounts of shoe goop. I'm not certain if the additional weight and force of Teddy's movements is the issue or if they changed something within their quality, but it's not worth buying $50 shoes each month. This was so disappointing because they did work so well for a few years and look so darn stylish.

So we tried a new brand My Friendly's at the end of October. They seemed more durable, still fit over the SMOs and looked nice as well. But they're no longer wearable because the zipper pull literally pulled apart today with no hope of fixing it. And these parents don't want to invest $90+ in shoes every 3 months. I mean, I don't think it's unreasonable for a shoe to last a child close to a year ... or at least a school year.

Aside from the zipper, note the wear on the shoe. 

So, I clearly think sponsorship is the best route to go. As an added bonus, we can provide feedback on durability and quality of the product. But, as we've discovered, not all shoe brands fit SMOs. While you might view that as a limiting factor in this sponsorship pursuit, I only see it as an opportunity to help them become more inclusive and open up a brand new market that will be loyal customers for life if they have a quality project that fits over braces. 

Win. Win. Win.

Now, hit me up if you have any connections to shoe companies please. 

Grateful for Graceful Wakes

Oh my goodness! Today was the perfect summer day thanks to Graceful Wakes. This amazing organization partners with local water ski clubs (in this case the Rock Aqua Jays down in Janesville) to host accessible water skiing clinics for people of all abilities.

Teddy participated in this program last year for the first time and had a great day despite pretty crummy weather. This year our entire family went for the day of fun and enjoyed perfect summer weather and sunshine.

Teddy got to ski 3 times and was so excited each time. The last time he even was waving as he came back to shore. The skiers sit in a chair mounted on a ski, so even people who cannot walk can have a go at water skiing. They have side skiers on either side of the chair to hold and support the individual skiing in the chair.

It’s incredible the amount of volunteers who make these clinics happen. Picture almost 25 people getting up to 3 turns skiing, assisted by 2 buddies each time, plus another couple people in the water assisting with getting into the chair and catching when the skiers return, plus boat drivers, announcers and photographers. We’re so grateful they chose to give their time and talents to allow our family to enjoy today.

Teddy also got to hang out on the pontoon boat. We missed the few rides they did, but we asked if we could sit on the boat earlier in the day and were welcomed aboard. That was great since Teddy is obsessed with pontoons, and that’s all he wanted in the moment.

Just call him Captain Teddy. That's what he thinks at least.

He also got to enjoy a tubing ride with AJ, and AJ managed to sneak in a second tube ride. It’s such a fun treat for our kiddos since this isn’t something we normally have access to do.

The boys enjoyed their tube ride ... a lot!

It was extra cool to have one of our MTT friends Raymond and his family there as well, so we got to visit with them. Plus one of my running buddies now lives in the Janesville area, so she and her family joined us as well to watch Teddy’s first run.

Then on our way home, we had to stop at the World’s largest Culvers (a Wisconsin custard and fast food restaurant). The real treat was we walked into the restaurant right ahead of my aunt and cousins from Mississippi—they were headed home from a week at my parent’s farm. We hadn’t planned it, yet our paths spontaneously crossed.

Such a serendipitous moment!

This goes into the memory bank as a fantastic summer fun day—we’re so grateful for these types of opportunities. Sometimes we have to fight for things for Teddy, and these types of gifts of accessibility and inclusion are even sweeter than the best custard in the world.

Adaptive Motor Skills Class

We're fortunate to live in a community with a university that has strong nursing, social work and education programs. We've gotten a number of our caregivers, particularly through the nursing program, though we've benefited from all those programs for our childcare providers.

We've also benefited from the education program because there is an adaptive physical education class that serves as instructors for an adaptive swim class and new this year is an adaptive motor skills class that partners college students with kids like Teddy for 1.5 hours of phy ed fun. The college students work on lesson plans, adapting lessons and learning a wide range of skills, abilities and personalities. And the participants simply get to enjoy the physical activities.

Given that Teddy loves gym and being on the go, it was a no-brainer to sign him up for the class. He really enjoyed it fall semester, so he's participating again this spring. It's also nice that it's long enough that we can sneak back to eat dinner as a family in peace, or get some alone time with AJ, etc. since we don't have to be present for the class.

It's a great resource to have in our community, and I'm grateful for those who run the program and volunteer, like one of Teddy's paraprofessional staff. In fact, the night this picture was taken, she informed me Teddy felt she was bored at work and needed him to dump out all the book bins ... repeatedly ... for her to have a bit more work to do. 

At least he's cute ...

Clearly, he loves this!