Seizures Suck

Life with Teddy is a roller coaster of emotions.

My day started by waking him at 4:45 for a sleep-deprived EEG. This photo was taken while I sprinted after him as he explored the hospital before his EEG, with him collapsing in fits of giggles when I blocked the stairs every time. (There's a reason I wore running shoes.)

Teddy had to say hi to everyone.

The EEG was miserable. We hate seeing him so stressed, the wires fell off even without him pulling them, and it'll be a miracle if his doctor can make heads or tails of it. But he perked up the moment he got to leave and got over the stress much quicker than us.

Now he's tired and craby, understandably. Yet I just signed him up for Miracle Leaugue, which is guaranteed to be a highlight of our summer.

In case you're wondering why the EEG was needed, Teddy had his first seizures that we've observed in 3.5 years last week. The seizures came a week after the hives, yet something was still off with Teddy with him waking up screaming 2 nights in a row before we saw the seizures. It makes us wonder whether he's had other seizures that we missed. 

The good news is the seizures seemed to reset him to where he was back to baseline pretty much the next day. The bad news is that we had to squeeze in labs and this lovely EEG in less than a week before his regularly scheduled neurology appointment tomorrow. 

Morale of the story: seizures suck. Oh, and I apparently don't like roller coasters now that I'm an adult.