So Many Faces, So Many Countries

When we first connected with our PIGN-CDG Facebook group, I believe there were at most 5 other families who had a child or children diagnosed with PIGN. It was a monumental day when a new family joined because it happened once or twice a year. I could tell you each child by name and location, along with their parent(s). 

In the past two alone, we've had 3 families join our group from 3 different countries. Let's just say I can't keep up with everyone any more. And I'm OK with that because it means we all have a greater support network, people to pray for us, root for our children and share their lived knowledge. 

One of the other moms compiled this video of the vast majority of our group for World CDG Day. It's obviously missing the 3 newest families, along with just a handful of others from our group. My thanks to Ashleigh for her advocacy for all our PIGN families. She is one of the most welcoming and supportive people you could imagine, who has kind words and honest support for everyone in our group. She was the first other parent we connected with after Teddy's diagnosis, and it felt like we were instantly close friends. I greatly appreciate her efforts in putting this video together and letting me share our children with the world. 

If you've ever wondered what PIGN-CDG looks like, or whether there's anyone in your country with this disorder, please enjoy our beautiful, determined children.