This is our family's journey with the rare PIGN genetic disorder Multiple Congenital Anomalies-Hypotonia-Seizures Syndrome 1. When our son was diagnosed in November 2015, we were told he was the 15th documented case in the world. We've discovered more affected individuals since, but it's still an extremely rare and unknown condition since its discovery in 2011. Our hope is to create awareness of the disorder and foster a sense of community among those affected by the disorder.
Another weekend in June, another dairy breakfast. Both boys enjoyed the food, especially the watermelon that we encountered here for the first time. There was an awesome collection of cute little animals including sheep, goats, chickens, ducks, llamas, cows and bunnies. Teddy got to pet a fuzzy baby bunny and a cuddly baby goat (that I would have liked to keep).
Just think ... we could create goat therapy!
Teddy also got to sit on a few tractors, which he absolutely loved.
That smile ... that kid.
I think he's going to be sad that June Dairy Month is over ...