So, I did about a 30-minute phone interview while heading back to Las Vegas to fly home. We sent them some photos of Teddy late this week and waited patiently for the story to post online yesterday (at 9:30 p.m.)
We were a bit surprised to see this morning that Teddy made the front page of the newspaper, along with a huge family photo with the rest of the story. And one person already contacted me to get more information about the Facebook groups we've found. For me, that makes it absolutely worth including Teddy in the story.
|Front page, lead story, charming Teddy.|
Here's the link to the online version of the article: http://www.jsonline.com/news/health/although-still-in-infancy-dna-sequencing-rapidly-evolving-b99701088z1-375158841.html
There's also an interesting (at least to us) podcast where the reporters share a bit more that's not in the actual story: http://www.jsonline.com/news/wisconsin/behind-the-headlines-308783881.html
The story is a follow-up on a Pulitzer Prize-winning piece done about 6 years ago on one of the first cases of exome sequencing to diagnose and treat an individual, which was done at Children's Hospital. They were pioneers in this type of genetic testing, and the Journal Sentinel covered the story originally and has continued to do follow-up pieces. A book One in a Billion: The Story of Nic Volker and the Dawn of the Genomic Age is being released this week about that first child whose exome was sequenced and the doors it's opened for others like Teddy.
I never thought my child would be on the front page of the largest newspaper in our state, but I'm so excited that his story is being shared with others.