Teddy's Triumphs and Trials

This is our family's journey with the rare PIGN genetic disorder Multiple Congenital Anomalies-Hypotonia-Seizures Syndrome 1. When our son was diagnosed in November 2015, we were told he was the 15th documented case in the world. We've discovered more affected individuals since, but it's still an extremely rare and unknown condition since its discovery in 2011. Our hope is to create awareness of the disorder and foster a sense of community among those affected by the disorder.

Monday, May 22, 2017

Reasons Why I Never Opened Teddy's Final IEP Until Tonight

Direct quote from IEP:

The IEP team determined that the specificity (wait, in the actual IEP it's misspelled as "specifity") and amount of instruction needed to meet all of Teddy's goals and objectives could not be met in general education even with supplemental aides and services.

Yeah, that about summarizes it. Do I really need any other reasons?

Teddy's Triumphs and Trials

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Monday, May 22, 2017

Reasons Why I Never Opened Teddy's Final IEP Until Tonight

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