tag:blogger.com,1999:blog-4729148426471074222.post1993337019915311550..comments2023-08-27T10:06:12.919-05:00Comments on Teddy's Triumphs and Trials: The Smiling Faces of CDG PIGNKerryhttp://www.blogger.com/profile/02206640726990793677noreply@blogger.comBlogger15125tag:blogger.com,1999:blog-4729148426471074222.post-74403862189483480932019-02-13T21:14:37.462-06:002019-02-13T21:14:37.462-06:00If you want to reach out to me through Facebook, I...If you want to reach out to me through Facebook, I can connect you to the group. Otherwise if you send me your email address, I'm happy to talk more with you.Kerryhttps://www.blogger.com/profile/02206640726990793677noreply@blogger.comtag:blogger.com,1999:blog-4729148426471074222.post-70466904135113712442019-02-13T17:22:25.839-06:002019-02-13T17:22:25.839-06:00My daughter was diagnosed with this 5 years ago. P...My daughter was diagnosed with this 5 years ago. Please email I would like to connect with other families.Mechellehttps://www.blogger.com/profile/13241169859066699409noreply@blogger.comtag:blogger.com,1999:blog-4729148426471074222.post-53300182720791923482018-11-24T21:22:49.295-06:002018-11-24T21:22:49.295-06:00The CDG group is https://www.facebook.com/groups/1...The CDG group is https://www.facebook.com/groups/129138224432/<br /><br />If your daughter has CDG-PIGN, then I can provide you with the link for that group.Kerryhttps://www.blogger.com/profile/02206640726990793677noreply@blogger.comtag:blogger.com,1999:blog-4729148426471074222.post-1987551921484903592018-11-21T06:25:19.112-06:002018-11-21T06:25:19.112-06:00Hi, my daughter was diagnosed with cdg.
Can i jo...Hi, my daughter was diagnosed with cdg. <br /> Can i join this group? Anonymoushttps://www.blogger.com/profile/00047443673766443640noreply@blogger.comtag:blogger.com,1999:blog-4729148426471074222.post-83588516374499187872016-06-04T07:38:19.419-05:002016-06-04T07:38:19.419-05:00https://www.facebook.com/groups/1487776188212507/?...https://www.facebook.com/groups/1487776188212507/?fref=tsAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4729148426471074222.post-25442248219027813672016-06-03T13:42:06.819-05:002016-06-03T13:42:06.819-05:00PIGN GPI-biosynthesis defectsPIGN GPI-biosynthesis defectsAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4729148426471074222.post-23564874195352731322016-06-02T02:34:42.419-05:002016-06-02T02:34:42.419-05:00Please visit on facebook our PIGN GPI-biosynthesis...Please visit on facebook our PIGN GPI-biosynthesis defects group.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4729148426471074222.post-26669191228922889742016-06-01T15:34:04.017-05:002016-06-01T15:34:04.017-05:00Hi!
Write to me dorles.cim@gmail.comHi! <br />Write to me dorles.cim@gmail.comAnonymousnoreply@blogger.comtag:blogger.com,1999:blog-4729148426471074222.post-73061125389213427202016-04-11T08:16:05.971-05:002016-04-11T08:16:05.971-05:00to Emily ,poland .
my name is gazi i have child li...to Emily ,poland .<br />my name is gazi i have child like you ,if you want to send to me , i have facebook :https://www.facebook.com/ghazi.a.alhaleemAnonymoushttps://www.blogger.com/profile/00667055419760207274noreply@blogger.comtag:blogger.com,1999:blog-4729148426471074222.post-47181061170678231772016-03-07T20:20:16.741-06:002016-03-07T20:20:16.741-06:00Thanks to everyone for the kind words here and on ...Thanks to everyone for the kind words here and on Facebook. It's amazing to me that in a single day this post has reached more than 500 people. Kerryhttps://www.blogger.com/profile/02206640726990793677noreply@blogger.comtag:blogger.com,1999:blog-4729148426471074222.post-81380515988952255932016-03-07T15:07:15.275-06:002016-03-07T15:07:15.275-06:00Our sweet smiles!Our sweet smiles!Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-4729148426471074222.post-66550340848647692262016-03-06T20:37:25.303-06:002016-03-06T20:37:25.303-06:00I want to thank the families for sharing the smile...I want to thank the families for sharing the smiles and stories of their children. I know Kerry and David have benefited from connecting with these families. I am happy to be able to put names, faces, and smiles to other children that have CDG PIGN. We are blessed to have Teddy in our family. I know the other families feel blessed by their children. Teddy has taught us so much. His smile lights up the room. Our thoughts and prayer are with all the families. Grandma and Grandpa love you Teddy.Debbehttps://www.blogger.com/profile/13510861008209067483noreply@blogger.comtag:blogger.com,1999:blog-4729148426471074222.post-49497244682319568652016-03-06T20:27:42.096-06:002016-03-06T20:27:42.096-06:00This comment has been removed by the author.Debbehttps://www.blogger.com/profile/13510861008209067483noreply@blogger.comtag:blogger.com,1999:blog-4729148426471074222.post-31916846207377589852016-03-06T19:59:33.395-06:002016-03-06T19:59:33.395-06:00Each and everyone of these kids are special gifts ...Each and everyone of these kids are special gifts from God to everyone who meets them as you read their stories. Thank you so much for sharing all their stories! Thoughts and prayers are with you all.dikileyhttps://www.blogger.com/profile/04447601076520521327noreply@blogger.comtag:blogger.com,1999:blog-4729148426471074222.post-14955888735933032062016-03-06T18:22:58.412-06:002016-03-06T18:22:58.412-06:00Needless to say, these beautiful children are bles...Needless to say, these beautiful children are blessings to their families. I for one can say, that Teddy has taught me so many things about what is truly important in life. Thanks T-Man ~ Grandma and Grandpa love you very much! <br /><br />"A happy heart makes the face cheerful." -Proverbs 15:13Peggyhttps://www.blogger.com/profile/16006257123526923158noreply@blogger.com