Teddy's Triumphs and Trials

This is our family's journey with the rare PIGN genetic disorder Multiple Congenital Anomalies-Hypotonia-Seizures Syndrome 1. When our son was diagnosed in November 2015, we were told he was the 15th documented case in the world. We've discovered more affected individuals since, but it's still an extremely rare and unknown condition since its discovery in 2011. Our hope is to create awareness of the disorder and foster a sense of community among those affected by the disorder.

Sunday, August 27, 2017

A Few More Vacation Photos

As promised, here's a few more vacation pictures ...

Teddy absolutely loved exploring the lava caves at Crater of the Moon.

Hiking in the rain. Teddy ripped off our poncho ... and shredded it. I got wet. And I got to carry Teddy.

One of our best family photos of the vacation at Yellowstone Canyon.

Checking out the fumaroles. AJ loved all the geologic formations.

It's safe. Dave is holding Teddy in place with one hand.

AJ and I doing muscle poses to photo bomb Ted.

Best brothers ever (in Badlands National Park).

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